It's So Noisy at the Fair: The Diabetic Thread

Good to hear. I'll be doing another three-month reading on Tuesday; my last one, my fourth, was down to 7.5 from 10.1. My home readings have levelled off in the ~5.5 range. I'll have to fight against complacency; I do find myself eating the occasional extra Keto cookie and such now that the initial panic has subsided. The one thing that's going great is weight loss; down to 164 this morning.

all encouraging news, good stuff!!

The one thing that's going great is weight loss; down to 164 this morning.

Nice! Once I got my medication dialed in properly, and made the accompanying mental adjustments, weight control was and has remained pretty easy. I've weighed roughly 175 (at 6'2") for 20+ years.

One thing I'm just becoming aware of--who even thinks about these things until you have to?--is the extra sugar in regular 2% milk. It's like all the fruit juice I've been guzzling the past 20 summers: "Isn't that great for my health that I don't drink pop?" As soon as I finish the milk I have on hand, I'll probably switch over to Joyya (knowing full well I'll over-pay for it).

my fourth A1c test today since March 2022 diagnoses (initial was 8 - and subsequent results were 6.1 and 6)

today I’m at 5.7 which was a welcome surprise

i expected it to higher but honestly i am still learning what does/doesn’t affect it, still a bit mystifying tbh

i thought maybe since I wasn’t able to exercise at all the past couple of months due to back problems that that might put me higher, plus christmas brought inevitable carbs that I couldn’t avoid & felt like my diet got a bit lazier

anyway, with these results it feels encouraging to finally get something like a win, and i am taking it as a sign to keep doing what i’m doing

will f/up w doc to see what they say

Good job. I was worried about Christmas too, but got through with good levels (5.3 - 5.5 at home; last three-month was 7.2 but before the holiday) and my weight's down to 162 some mornings, the lowest it's been in three decades. And I'm not as panicky about everything I eat now.

hi-five :D

the not-panicky about eating the wrong thing is huge, it’s like you want to go back & hug yourself for all freaking out you did, i can totally relate to that

Yeah, getting over food panic was a major step for me. I try to eat healthy but I refuse to eat joyless flavorless food just because it's theoretically better for me.

Perhaps it will help to consider a diabetes anti-role model: Lemmy. When he got diagnosed (which included spending a week in a coma), he took his pills, but other than that his only lifestyle change was switching from Jack Daniels & Coke to Jack Daniels & Diet Coke. I don't think he even gave up speed.

lmao <3 u Lemmy

As long as I can still shoot speed, I'm happy.

I feel like I haven't given up anything in terms of regular meals--or at least I'm loving everything I'm eating, and not thinking about the pizza/cheeseburgers I've given up. With snacks, I've given up a little. The Keto/Good Fats/Good Eats stuff I'm buying does lose a bit, but I've found one really good yogurt (Two Good vanilla) that tastes great and only has 3g of carbohydrates per 1/3 cup.

I've been eating a lot of Healthy Choice microwave dinners — they're meat and vegetables with maybe a little bit of pasta, with optional sauce/gravy that I almost always skip.

There a couple of those I like, and I always add extra vegetables. I cook lots of fish and chicken, and I found a Thai soup I really like.

Had my last two bi-weekly blood tests, won't go back for three months now. In view of how engaged my doctor is--not at all--I'll be on my own till the spring.

Readings are good: 6.7 then 6.5 for the three-month levels, 5.2 at home last night (lowest yet). Had my first cheeseburger in almost three months to celebrate, probably the worst thing I could do--but added chick peas to my nightly salad as penance.

lol yeah my doctors office called after my lab results came in & they’re like “yep everything looks stable ok bye”

last 3-month visit i waited in the exam room for 30 minutes for a pointless 5 min “keep doing what you’re doing” consultation

so i guess no visit at all is an improvement

My doctor's receptionist retired a couple of weeks ago, and she was an intermediary I had some rapport with. Typical: I didn't realize that when we'd been communicating via e-mail, it was her address, not the office's. ("I've just retired...please contact Dr. _______ at the office.) Wouldn't be shocked if my doctor doesn't even have an e-mail address attached to the office.

Buses cancelled where I was today, so a lot of absent students; it was pizza day, and there was extra for any teachers who wanted some. So I had my first pizza since getting the diagnosis in October. Plain cheese, two small slices--I was fine with that, though there was a little guilt about not limiting myself to one. I probably should have self-tested tonight to see if there was a spike, but it would have been nine hours later, so I doubt it would have shown up anyway. Plus I only like good news.

sometimes not knowing is more manageable than knowing & not being able to do anything abt it.

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

i just ate like 12 random scoops of various curry & like a teaspoon of rice …. and then made a protein bowl when i got home.

not ideal

if i could have ordered an actual dish for myself like i had expected, it would have been fine! grr

Yeah, I wasn't totally happy with the restaurant (pub, really) my sister chose for her birthday last night--the fish was good, but nothing in the way of vegetables except salad. But you don't want to end up being a drag when it's her night (what I ate was fine)...I've been eating this Thai soup once a week and the food-label numbers are really good.

Just to be clear, I wasn't ambushed like you; we both thought the mains were okay from the online menu, and I think just assumed there'd be a vegetable option on the side.

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

Ugh, this sounds like a nightmare. "Welcome to the mandatory meal! Here's your slice of cake!" "Uh, thanks...?"

yeah it was quite stressful

Well, the one thing I've learned over the last 20 years is that one bad meal won't kill you. There are definitely times when I've eaten really poorly and felt it (I remember once at work having a bowl of macaroni and cheese, with bread crumbs on top, for lunch and being basically in a coma for the rest of the afternoon) but I can always stabilize my system pretty well by the next day. I've even had days where my sugar spiked for no reason at all — I was eating healthy, getting an acceptable amount of exercise, and it just shot into the 300s for no reason at all, like my pancreas had just decided to take the day off. So, you know, do your best. It'll work out.

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

No question mark, but there is a question in there.

Based on my own experience, while diabetes does weaken your system over time, the process can be very gradual (like "river water wearing down a stone" gradual), especially if you are doing your best to be healthy. If you're disregarding the disease and eating pizza and snack cakes all day, drinking a lot, etc., etc., then sure, it'll progress faster than it otherwise might — that's just logical. But getting the right medication, eating as healthy as you can whenever you can, exercising (without even being a nut about it), all helps a surprising amount.

Mr. Jaq who has been trying to manage type 2 with oral meds for quite awhile (with occasional very long spates of denial and bursts of keto) is now on a small amount of insulin overnight. Hoping he takes it seriously and is consistent with it. Kudos to all y'all for dealing with it.

keto as an idea offers some useful recipes for me like when i am experimenting w desserts or baking or looking for a no carb option here or there but there is no way i’d ever go down that road as a whole lifestyle

rolling the dice on ketosis seems so scary to me & anecdotally v hard to achieve without encountering some p serious complications?

After a day of Peg-Lyte and more or less fasting--if you know what I mean, you'll know what I mean--had a reading of 4.9, first one under 5.0.

with occasional very long spates of denial--this is what I worry about most. With me it would be complacency, brought on by good readings like that one, more than denial.

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

― clemenza, Saturday, February 18, 2023 6:08 PM (three days ago) bookmarkflaglink

as a type 1, the thing the doctor checks these days (which they can now monitor) is 'time in range' and therefore it seems like the spikes don't matter as much? i'm guessing type 2 would be the same

I had my first eye exam in three years this month and the optometrist said it's still not possible to tell from the close up pics of my eyes that I'm diabetic, so good result there. And my PCP checks sensation in my feet at every quarterly visit. Otherwise my A1C still hangs around 6.3-6.5, fasting sugar around 110, and the doc is not too worried about it. Steady diet of metformin and glipizide as usual. (Actually she may have taken her eye off my diabetes recently as she made a big error in my thyroid meds, raising my dose when she should have lowered it, and she's been focused on those getting those numbers back in line the last 2 visits.)

(xpost) Thanks, that's how I've been approaching this--home-testing once a week, and picking an opportune moment. I figure if that number's good, then the whole week's good.

Thanks for the link Wm - Well hello this thread. Like clemenza I knew I'd end up here eventually, but what triggered it was a perfect storm of other shit - a fall causing a knee scrape that got weirdly infected, which I took antibiotics for which trggered a UTI, which they gave me too-weak 2nd antibotics for, so I ended up in hospital yesterday with a kidney infection.

My finger prick tests were as high as 18 yesterday morning (fasting), and didnt drop below 15 all day. I still dont understand all the accucheck tests vs actual blood tests stuff. I guess I will see my GP asap next week and get started!

Are those A1C levels? Because, uh, holy shit.

Best of luck.

Those do seem high for Accu-chek--maybe it's a different calibration or something? If you feel fine, though, I'm sure it's something you can bring down.

I went through a month where because my weight stayed low, I wasn't concerned about blood sugar. But it did slowly creep up, from a low of 4.9 to back over 6.0. The next week, though, it was back to 5.0. Complacency continues to be a concern--I find I snack a lot, have a bigger breakfast out once or twice a week, and am back to the occasional cheeseburger or piece of pizza--and I thought about asking the doctor for more of the appetite suppressant I was using at the beginning and then stopped. I'm hungry constantly. Otherwise, though, still doing well.

yeah I am still untreated at this point. I *do* feel very sick, but I think thats the kidney infection. Only symptoms prior really was INTENSE thirst/peeing cycles that were getting me up twice a night. Water has never tasted so good.Thats calmed down a bit since I had IV saline yesterday.

Only symptoms prior really was INTENSE thirst/peeing cycles that were getting me up twice a night. Water has never tasted so good.

That was my first symptom. That and passing out in meetings at work after lunch, and losing something like 20 pounds in about six weeks.

I still dont understand all the accucheck tests vs actual blood tests stuff.

I think--correct me if I'm wrong--the finger-prick at home is a snapshot of that moment, whereas the more formal blood test is a three-month average.

Which helped me not be so panicky at the beginning. My blood test started high, around 10.0, but my home tests right from the beginning were progressively lower, so I was confident they'd converge eventually.

Yeah previous tests were around 9. I'm not sure why it was so high yesterday. Combo of stress and fasting and illness I guess?

That's great then--it was a blip. Make changes, and you'll bring both numbers down (the three-month more gradually).

I assume the numbers trayce mentioned are blood glucose readings in mmol/L, which are the units they use outside the US. multiply by 18 to get mg/dL

get well soon, trayce!

Trayce, I read your post on 77 and it reminds me a lot of my weekend from hell in 2019 when I learned I also had type 2. I was soooooooooo thirsty. And peeing every 20 minutes, and the pee smelled like maple syrup. When I tried to eat, every food tasted like eating a 9volt battery. I finally got in to see a doctor. My A1C was 14 and my blood glucose reading during my first visit was 355. My eyes were fucked up for months and I kept having to buy new glasses prescriptions until they settled down again.

Four years in, I'm being far more lax with my diet and exercise than a lot of the other people in this thread lol. Maybe Jardiance covers up too many sins when it comes to A1C, but I'm steadily between 5.5-6.5 at every doctor visit now and my waking sugar levels are right around 100-120 each morning.

Four years in, I'm being far more lax with my diet and exercise than a lot of the other people in this thread lol. Maybe Jardiance covers up too many sins when it comes to A1C, but I'm steadily between 5.5-6.5 at every doctor visit now and my waking sugar levels are right around 100-120 each morning.

I haven't really confessed my eating habits in detail because I didn't want to upset anyone who's got it tougher, but yeah, I'm waking up somewhere between 80-90 and still managing to eat bagels, hamburgers, pizza, and even a few cookies or a Snickers bar once a day. Jardiance has been a fucking miracle.

Going to ask my primary care doc about Jardiance, and about semaglutide (Ozempic et al) at my next checkup in a couple of weeks. I've been relying on metformin, glipizide and willpower for several years now and the willpower part is starting to wear me down mentally and emotionally. Part of me wants to take the just-stop-eating route (semaglutide) but I fucking love good food and drink. So if Jardiance can be a fucking miracle for me too and still allow a place for food in my life, sign me up.

There's a clinic in Tupelo that does semaglutide for anyone, barely any screening involved, $66 per weekly shot, cash and carry.

Fully sweetened soda is probably what got me into this position in the first place (I was a Coke and Mountain Dew fiend for decades), and that's the main thing I'm almost entirely eradicated from my diet and probably why my regular diet isn't throwing off my levels too much. Even if you pre-diabetic or not diabetic at all, STOP DRINKING SODAS.

WmC, my mom tried Jardiance for a while and her body didn't like it very much, so it's not a solution for everyone. But if it works for you, it REALLY works. Hope you can try it.

Mr. Jaq has been on ozempic for a month or so. The appetite reduction hasn't been much noticed but it also causes your liver to make/release less glucose and your pancreas to make more insulin. He's been able to taper back his injected insulin, drop the starch-blocker (still taking metformin) and his blood sugar readings have become more stable. His next A1C will indicate just how stable I guess.

Sugar being the cause of type 2 is actually not true!

I’m pre diabetic but I haven’t been taking my metformin rx. I can never remember to take it with meals because I eat so erratically, and it often makes me feel nauseous.

One of psych meds fucks with my blood sugar levels too.

My partner's type 2 as well and been on Metformin quite a few years, and he doesnt watch what he eats AT ALL, but his bloods are remission level. He mustve had it mild - maybe prediabetes (though he never said thats what it was), because he never had any symptoms.

we’ve all been there - no judgement <3

had my 3-monthly A1C test and
am back to 5.7 so i feel reassured

my last one went up to 5.9 after a year at 5.7 which isnt technically a big deal but quietly felt like some kind of small failure psychologically

anyway we back

I don't know why I called this the diabetic thread, rather than the diabetes thread.

I'm right there with you...maybe. I did my first home-test in three weeks the other night with some apprehension--I've put 10 of the 25 pounds I lost back on--but it came in at 5.7. I've really let the three-month timeline slide, though. I'm going to go in tomorrow morning for my first A1C since November. I always home-test under optimum conditions, so we'll see.

5.9. There's been a gradual uptick the past year, but still good:

03/13/23 - 5.7
07/19/23 - 5.7
11/06/23 - 5.8
04/12/24 - 5.9

I've been advised to supplement my Vitamin D intake, which doesn't surprise me; I've all but cut out dairy the past 18 months, just almond/cashew/soy milk with cereal and some yogurt.

Checking in...Did my first home-test in five weeks: 5.7, exactly like the last one. Also, was talking to a cousin-in-law I rarely see the other day, and I didn't realize got diagnosed with Type II 30 years ago (he's in his late '60s). Says he home-tests once a month.

This quarter's A1C was 6.4 -- the 6.1 in March was the anomaly, not this one. Doc said "yeah you're good, carry on."

Meanwhile I'm trying to create a peanut brittle business, lol. I've been making it for so many years now that I don't have to sample each batch, and making so much of it lately that I don't want to sample it; appearance and aroma will tell me if something's off. I get my dopamine hit from watching customers' orgasmic eyerolls rather than from eating the sugar myself. (Bartending is similar.)

Oops. I have an appt with my diabetes team nurse today and I havent done an A1C test in well over 3 months :| I imagine my avg has gone up but is probly still in the sixes - I prick test occasionally after a naughty meal and it almost never goes higher than 8 even when Ive eaten mashed potatoes or rice or something.

Home test a week ago was 5.2. So of course lots of celebratory cheating since.

wow! congratulations!

5.8 for me, so holding steady aka ppl call me right said fred

xp As a recipient of your brittle a few years ago, I can understand. Fucking delicious!!

that brittle shows impressive, nay superhuman forbearance WmC

Monthly home-test, 7.3--first reading over even 6.5 in a year. Going to hope it's a blip caused by something I'm not factoring in, but I will get on top of it right away in terms of diet; as mentioned above, I've really loosened up on that the past couple of years, and it's never shown up in testing, so complacency sets in.

(I'll probably do another test in three or four days, just to see if it was a fluke. And no cereal tonight--back to carrots!)

hang in there! just a little course-correction is all

Thanks--a correction, just like the stock market! I'm confident I can go semi-monk for a few days and fix it.

<3

Sigh of relief--waited a week, 5.8 (seven of my nine home-tests since March have been between 5.7-6.0). So, while I have been a bit more vigilant this week, I'll put the 7.3 down as a blip, maybe even a false or flawed reading. I still had some raisin tea biscuits, my morning bagels, french fries yesterday, lasagna today. I did make an effort to go back to more vegetables for dinner, so maybe that made a difference.

quarterly A1C of 5.8 - repeat of last quarter so steady as she goes I guess

our local Winco was selling take & bake personal-sizs cauliflower crust pizzas so i split one w MrVeg last night, my first pizza of any kind since my diagnosis!

the crust was cauli w mozzarella cheese but augmented w rice flour which i wasnt sure about,l - i didnt have any real spike from so all good there. it was a very very thin crust too, so that helped. cooked up super crisp & was yummo!

Excellent. I did a home test two nights ago, back up to 7.3. I don't get it, really. I haven't done an A1C since April--think I'll set one up for next week.

Going to the doctor on Wednesday. My daily numbers have dropped significantly since I started exercising 5 days a week (light weights and resistance bands) so we'll see whether it shows up in the 90 day average.

fingers crossed for you!

Geez I am still eating pizza occasionally lol :/

But my fasting or 2-hours-later prick tests stay steadily around 6-6.5 except if I am being a twat and have just eaten 2 date scones with butter like I did ysterday.

My brother-in-law and I were having a good time making fun of my bogus system of home-testing at only the most optimal times, like after two good days in a row and late at night. Things to put on my tombstone: "Was working on a streak of nine consecutive readings under 6.0."

At my Sept checkup my A1C was unchanged at 6.4. My willpower is fading and my sweet tooth is getting worse and I asked my doctor if she'd try me out on tirzepatide (mounjaro, ugh what a stupid name) since my insurance refused to cover semaglutide. She was all for it but the ball has been in my pharmacy's and insurance company's court for 2 weeks so I assume it has been or will be refused. A hundred bucks a week without insurance, which I can't swing. I'm just tired of food, tired of thinking about food. Fuck food.

I can say that semaglutide definitely did for my foodie brain for quite some time. I wouldn't recommend it for a casual user, the stuff is brutal - I had terrible nausea and runs for weeks.

And I hate to say but while it did mostly kill my appetite, I too have developed more of a sweet tooth than I ever used to have (it was non existent til a few years ago). Then again that could also be because Ive cut booze consumption back by about 70%

mr veg found these nice dark choc peanut butter cups w only 6g of cane sugar so those scratch my itch pretty well (or as well as i can manage without losing my mind)

i have noticed that since i’ve cut down so much on sweets i’m now turning into a salt junkie - i catch myself eating tons of salami & cheese & have to continually try to scale back

i do occasionally debase myself for a diet coke & a bag of doritos lol

but zero-sugar sweet stuff really makes my sugar cravings go crazy so i try to avoid if i can

I'm lucky, I loath the taste of sugar replacements so I don't tend to scarf those down (unlike Barney who drinks a metric buttload of Pepsi Max). I can usually just do a couple of those date/choc/nut blissballs or a few discs of choc melts, or one biscuit. HE can't - if I leave any bags of lollies/bix around he'll just eat them all in one go and I do not understand why his diabeetus isnt ruined from it?! Not fair.