fuuuck
― illegal economic migration (Tracer Hand), Monday, 16 July 2018 11:58 (five years ago) link
Aw, poor guy. I'm glad that everything's alright now.
― how's life, Monday, 16 July 2018 12:19 (five years ago) link
The worst moment was a few minutes after I'd deciphered "herpes" and read the NHS webpage about neonatal herpes. Luckily it wasn't viral.
― Hey Bob (Scik Mouthy), Monday, 16 July 2018 12:21 (five years ago) link
fuck, sympathies to everyone, that sounds grim.
We nearly had an A&E incident last night after F, trying to cool down, put his hand on a fan and got his little finger sliced by the blades. Poor mite realised he wasn't supposed to have done that, so hid his hand and tried to pretend (through sobs and while bleeding everywhere) that he was "fine, fine I am OK really".
― stet, Monday, 16 July 2018 13:43 (five years ago) link
oh man
― illegal economic migration (Tracer Hand), Monday, 16 July 2018 16:51 (five years ago) link
i guess it's the season for this stuff. my 9-y-o got chomped so bad by a mosquito two nights ago that yesterday he was covered in welts as big as bee stings. he had one on his toe that bulged up like a blister and then POPPED and then got INFECTED so now he can barely walk and is on oral antiobiotics. from a goddamn mosquito!
― illegal economic migration (Tracer Hand), Monday, 16 July 2018 16:53 (five years ago) link
poor babies! mine's hair is all falling out but that's a thing at this age - same happened with his elder brother.Stet what kind of fan was it? I've told my son not to touch the fan at all but he'll do it to be naughty.he's three and does all this melodramatic 'martyr' stuff when he's upset, 'I want you to take all my toys away and give them to other children then I WON'T EVEN HAVE ANY' (crying)
― kinder, Monday, 16 July 2018 22:22 (five years ago) link
It was a medium sized desk fan. Tonight he went up to and it said “now I have my plaster on I can touch it, yes? It can’t get through plaster can it?”I am no longer using my “If not duffer won’t drown” phrase around this kid
― stet, Monday, 16 July 2018 22:53 (five years ago) link
Aaaaand back in hospital.
― Hey Bob (Scik Mouthy), Sunday, 22 July 2018 16:29 (five years ago) link
:(
― Squeaky Fromage (VegemiteGrrl), Sunday, 22 July 2018 16:57 (five years ago) link
oh no, what's happened?
― kinder, Sunday, 22 July 2018 17:33 (five years ago) link
Not sure. Lots of vomiting. Trying to figure out if that and his rash are connected. Been here since 8am Saturday.
― Hey Bob (Scik Mouthy), Sunday, 22 July 2018 18:49 (five years ago) link
<3 to you guys
― kinder, Sunday, 22 July 2018 22:24 (five years ago) link
Feel better soon.
― how's life, Monday, 23 July 2018 00:40 (five years ago) link
So we're probably dealing with this: https://www.macmillan.org.uk/information-and-support/childrens-cancer/cancer-types/langerhans-cell-histiocytosis.html
Biopsy results due Wednesday. He's had every test you can imagine.
Which is a bit of a headfuck.
C's obs are stable as you like, and they're talking about transferring him to Bristol ASAP. It's highly treatable.
Not a great deal else to say.
Kinder, I know you talk to Em via other channels; I'd appreciate if you didn't message her yet until she's comfortable discussing it. I see ILX as a safe space for me but she may not want me posting about it yet. It's my instinct to talk to all and sundry because that's how I cope with things, but Em's more private.
― Hey Bob (Scik Mouthy), Monday, 23 July 2018 20:55 (five years ago) link
Sending thoughts
― calstars, Monday, 23 July 2018 20:56 (five years ago) link
fuck sake. I'm so sorry this is happening nick. hang in there. it will be a bit of a bumpy ride no doubt.
― illegal economic migration (Tracer Hand), Monday, 23 July 2018 21:00 (five years ago) link
jfc my sympathies. keep yr head up kid
― Οὖτις, Monday, 23 July 2018 21:06 (five years ago) link
Good luck to you and your kid!
― DJI, Monday, 23 July 2018 21:09 (five years ago) link
get wlel l'il sciko
― nonsensei (Ye Mad Puffin), Monday, 23 July 2018 21:18 (five years ago) link
omg, sicky. my heart goes out to you and yours.
― how's life, Monday, 23 July 2018 21:24 (five years ago) link
Thank you everyone. They might only be little ilx posts but they mean a lot.
― Hey Bob (Scik Mouthy), Monday, 23 July 2018 21:47 (five years ago) link
hugs from across the pond, wot wot
― Οὖτις, Monday, 23 July 2018 21:48 (five years ago) link
dang wishing you all strength
― droit au butt (Euler), Monday, 23 July 2018 22:00 (five years ago) link
ffs! I'm so sorry. Good wishes to you all for a fast track to a happy ending.
― mom tossed in kimchee (quincie), Monday, 23 July 2018 23:09 (five years ago) link
Scik, that is terrible to have to deal with. All the best to you and yours!
― Mince Pramthwart (James Morrison), Tuesday, 24 July 2018 00:07 (five years ago) link
<3 to all of you & esp yr little one
― Squeaky Fromage (VegemiteGrrl), Tuesday, 24 July 2018 01:33 (five years ago) link
oh scik, I'm so so sorry. of course I will respect your privacy. sending lots of love
― kinder, Tuesday, 24 July 2018 08:25 (five years ago) link
Fuck, Nick. So hugely sorry you’re all going through this. Shout if there are things we can do
― stet, Tuesday, 24 July 2018 10:32 (five years ago) link
Been in Bristol for 24+ hours now. I’m seeing a lot of the M5.
― Hey Bob (Scik Mouthy), Wednesday, 25 July 2018 04:37 (five years ago) link
bet that seems like a long drive. i emailed u on your ilx profile address btw just in case we can help with anything practical.
― kinder, Wednesday, 25 July 2018 13:20 (five years ago) link
It is LCH. Prognosis is ok but not great. Kinder, feel free to message Em. I’m not sure that address for me works anymore- try njsouthall at gmail dot com
― Hey Bob (Scik Mouthy), Wednesday, 25 July 2018 17:06 (five years ago) link
just saw this - so sorry man, sending best wishes
― a Stupendous Leg of Granite (bizarro gazzara), Wednesday, 25 July 2018 17:07 (five years ago) link
will re-send - don't feel obliged to reply unless you want to.your poor little guy - can't imagine what you're feeling - everything crossed for you.
― kinder, Wednesday, 25 July 2018 18:30 (five years ago) link
Nick I'm so sorry :( Fingers crossed bebe will recover and thrive well <3
― Stoop Crone (Trayce), Thursday, 26 July 2018 04:08 (five years ago) link
Chucked a thing on Facebook: https://www.facebook.com/njsouthall/posts/10101195655605614
― Hey Bob (Scik Mouthy), Monday, 30 July 2018 21:14 (five years ago) link
I am glad he is doing ok at the moment & that the rash is clearing up. Encouraging news is still good news! but my god what a load for you all to carry. Sending all my love to all of you, again, still, continually xo <3
― Squeaky Fromage (VegemiteGrrl), Monday, 30 July 2018 21:51 (five years ago) link
As somebody who works for a cancer charity (for a type of cancer which proportionately affects quite a lot of children) and so, seeing parents go through things like this more than I suppose most people do, I still have absolutely no idea how parents do get through things like this. Lots of love and strength to you all.
― Madchen, Tuesday, 31 July 2018 06:02 (five years ago) link
Wife and I were having an argument. E (3) picks up the handheld vacuum and yells "Stop arguing! If you argue I'm going to vacuum!" *runs vacuum*
― Fedora Dostoyevsky (man alive), Tuesday, 31 July 2018 14:54 (five years ago) link
https://www.instagram.com/p/Bl6Pfa3H4Ea/?utm_source=ig_share_sheet&igshid=2wfihn1zql9aHe’s doing pretty well.
― Hey Bob (Scik Mouthy), Tuesday, 31 July 2018 21:02 (five years ago) link
aww <3
― Regeneration Biology proudly presents Fetal Bovine Serum USA (bizarro gazzara), Tuesday, 31 July 2018 21:03 (five years ago) link
<3 beautiful
― Squeaky Fromage (VegemiteGrrl), Tuesday, 31 July 2018 22:34 (five years ago) link
Chemo and steroids started today. He’s still super happy and well, which is good. The oncology ward want to send us home next week - as he’s not ‘poorly’ there’s little point him being an inpatient.
― Hey Bob (Scik Mouthy), Thursday, 2 August 2018 20:38 (five years ago) link
Glad he's ok in himself. Would you need to come back up? Loads of positive vibes your way.
― kinder, Thursday, 2 August 2018 21:07 (five years ago) link
Aw what a sweetface. Sending happy healthy kid vibes your way!
― obliquity of the ecliptic (rrrobyn), Friday, 3 August 2018 01:52 (five years ago) link
Yeah we might need to come back up, depending how it goes. Really good day today - took him out for a couple of hours (as you saw!) and they’ve said if his meds go well over the weekend they can discharge him Monday. Brain MRI came back clear, first bone marrow sample came back clear. It seems he’s not as poorly / complex as Exeter feared. Still got 1-2 years of treatment and a lifetime of keeping an eye out in store, but having spent the last few days on an actual oncology ward we are doing very well.
― Hey Bob (Scik Mouthy), Friday, 3 August 2018 20:07 (five years ago) link
We were having lunch in Friska in Bristol yesterday, and N shared Em's noodle bowl thing. Em went to the toilet when they'd nearly finished an I was helping N spoon up the last of the broth.
"You could just pick it up with your hands and drink it now, if you wanted" I said.
N plunges her hands into the lukewarm broth and attempts to shovel it into her mouth.
"I meant pick up the bowl."
― Hey Bob (Scik Mouthy), Thursday, 9 August 2018 21:58 (five years ago) link
can't imagine what you're going through...my daughter had to have tubes put in her ears which is like a 10 minute surgery but I still lost sleep over it. you care about them so much more than you ever cared about yourself. the bill was $9500 by the way.
― frogbs, Thursday, 9 August 2018 22:02 (five years ago) link
I had that surgery twice as a kid, I dont recall it being too traumatic :) (I was more traumatised by the initial perforated ear/middle ear infection tbh)
$9500 though jesus america :(
― Stoop Crone (Trayce), Friday, 10 August 2018 02:00 (five years ago) link
ahahaha thats awesome
― Squeaky Fromage (VegemiteGrrl), Friday, 10 August 2018 02:07 (five years ago) link