It's So Noisy at the Fair: The Diabetic Thread

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My doctor's receptionist retired a couple of weeks ago, and she was an intermediary I had some rapport with. Typical: I didn't realize that when we'd been communicating via e-mail, it was her address, not the office's. ("I've just retired...please contact Dr. _______ at the office.) Wouldn't be shocked if my doctor doesn't even have an e-mail address attached to the office.

clemenza, Tuesday, 17 January 2023 04:53 (one year ago) link

one month passes...

Buses cancelled where I was today, so a lot of absent students; it was pizza day, and there was extra for any teachers who wanted some. So I had my first pizza since getting the diagnosis in October. Plain cheese, two small slices--I was fine with that, though there was a little guilt about not limiting myself to one. I probably should have self-tested tonight to see if there was a spike, but it would have been nine hours later, so I doubt it would have shown up anyway. Plus I only like good news.

clemenza, Saturday, 18 February 2023 06:32 (one year ago) link

sometimes not knowing is more manageable than knowing & not being able to do anything abt it.

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

i just ate like 12 random scoops of various curry & like a teaspoon of rice …. and then made a protein bowl when i got home.

not ideal

werewolves of laudanum (VegemiteGrrl), Saturday, 18 February 2023 07:18 (one year ago) link

if i could have ordered an actual dish for myself like i had expected, it would have been fine! grr

werewolves of laudanum (VegemiteGrrl), Saturday, 18 February 2023 07:19 (one year ago) link

Yeah, I wasn't totally happy with the restaurant (pub, really) my sister chose for her birthday last night--the fish was good, but nothing in the way of vegetables except salad. But you don't want to end up being a drag when it's her night (what I ate was fine)...I've been eating this Thai soup once a week and the food-label numbers are really good.

clemenza, Saturday, 18 February 2023 13:40 (one year ago) link

Just to be clear, I wasn't ambushed like you; we both thought the mains were okay from the online menu, and I think just assumed there'd be a vegetable option on the side.

clemenza, Saturday, 18 February 2023 13:46 (one year ago) link

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

Ugh, this sounds like a nightmare. "Welcome to the mandatory meal! Here's your slice of cake!" "Uh, thanks...?"

but also fuck you (unperson), Saturday, 18 February 2023 14:16 (one year ago) link

yeah it was quite stressful

werewolves of laudanum (VegemiteGrrl), Saturday, 18 February 2023 16:46 (one year ago) link

Well, the one thing I've learned over the last 20 years is that one bad meal won't kill you. There are definitely times when I've eaten really poorly and felt it (I remember once at work having a bowl of macaroni and cheese, with bread crumbs on top, for lunch and being basically in a coma for the rest of the afternoon) but I can always stabilize my system pretty well by the next day. I've even had days where my sugar spiked for no reason at all — I was eating healthy, getting an acceptable amount of exercise, and it just shot into the 300s for no reason at all, like my pancreas had just decided to take the day off. So, you know, do your best. It'll work out.

but also fuck you (unperson), Saturday, 18 February 2023 17:10 (one year ago) link

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

clemenza, Saturday, 18 February 2023 18:08 (one year ago) link

No question mark, but there is a question in there.

clemenza, Saturday, 18 February 2023 18:08 (one year ago) link

Based on my own experience, while diabetes does weaken your system over time, the process can be very gradual (like "river water wearing down a stone" gradual), especially if you are doing your best to be healthy. If you're disregarding the disease and eating pizza and snack cakes all day, drinking a lot, etc., etc., then sure, it'll progress faster than it otherwise might — that's just logical. But getting the right medication, eating as healthy as you can whenever you can, exercising (without even being a nut about it), all helps a surprising amount.

but also fuck you (unperson), Saturday, 18 February 2023 18:27 (one year ago) link

Mr. Jaq who has been trying to manage type 2 with oral meds for quite awhile (with occasional very long spates of denial and bursts of keto) is now on a small amount of insulin overnight. Hoping he takes it seriously and is consistent with it. Kudos to all y'all for dealing with it.

Jaq, Saturday, 18 February 2023 20:12 (one year ago) link

keto as an idea offers some useful recipes for me like when i am experimenting w desserts or baking or looking for a no carb option here or there but there is no way i’d ever go down that road as a whole lifestyle

rolling the dice on ketosis seems so scary to me & anecdotally v hard to achieve without encountering some p serious complications?

werewolves of laudanum (VegemiteGrrl), Saturday, 18 February 2023 21:41 (one year ago) link

After a day of Peg-Lyte and more or less fasting--if you know what I mean, you'll know what I mean--had a reading of 4.9, first one under 5.0.

with occasional very long spates of denial--this is what I worry about most. With me it would be complacency, brought on by good readings like that one, more than denial.

clemenza, Tuesday, 21 February 2023 22:13 (one year ago) link

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

― clemenza, Saturday, February 18, 2023 6:08 PM (three days ago) bookmarkflaglink

as a type 1, the thing the doctor checks these days (which they can now monitor) is 'time in range' and therefore it seems like the spikes don't matter as much? i'm guessing type 2 would be the same

just sayin, Tuesday, 21 February 2023 23:56 (one year ago) link

I had my first eye exam in three years this month and the optometrist said it's still not possible to tell from the close up pics of my eyes that I'm diabetic, so good result there. And my PCP checks sensation in my feet at every quarterly visit. Otherwise my A1C still hangs around 6.3-6.5, fasting sugar around 110, and the doc is not too worried about it. Steady diet of metformin and glipizide as usual. (Actually she may have taken her eye off my diabetes recently as she made a big error in my thyroid meds, raising my dose when she should have lowered it, and she's been focused on those getting those numbers back in line the last 2 visits.)

The Terroir of Tiny Town (WmC), Wednesday, 22 February 2023 00:14 (one year ago) link

(xpost) Thanks, that's how I've been approaching this--home-testing once a week, and picking an opportune moment. I figure if that number's good, then the whole week's good.

clemenza, Wednesday, 22 February 2023 01:39 (one year ago) link

three months pass...

Thanks for the link Wm - Well hello this thread. Like clemenza I knew I'd end up here eventually, but what triggered it was a perfect storm of other shit - a fall causing a knee scrape that got weirdly infected, which I took antibiotics for which trggered a UTI, which they gave me too-weak 2nd antibotics for, so I ended up in hospital yesterday with a kidney infection.

My finger prick tests were as high as 18 yesterday morning (fasting), and didnt drop below 15 all day. I still dont understand all the accucheck tests vs actual blood tests stuff. I guess I will see my GP asap next week and get started!

Stoop Crone (Trayce), Friday, 2 June 2023 23:43 (one year ago) link

Are those A1C levels? Because, uh, holy shit.

The Terroir of Tiny Town (WmC), Saturday, 3 June 2023 00:09 (one year ago) link

Best of luck.

Those do seem high for Accu-chek--maybe it's a different calibration or something? If you feel fine, though, I'm sure it's something you can bring down.

I went through a month where because my weight stayed low, I wasn't concerned about blood sugar. But it did slowly creep up, from a low of 4.9 to back over 6.0. The next week, though, it was back to 5.0. Complacency continues to be a concern--I find I snack a lot, have a bigger breakfast out once or twice a week, and am back to the occasional cheeseburger or piece of pizza--and I thought about asking the doctor for more of the appetite suppressant I was using at the beginning and then stopped. I'm hungry constantly. Otherwise, though, still doing well.

clemenza, Saturday, 3 June 2023 00:22 (one year ago) link

yeah I am still untreated at this point. I *do* feel very sick, but I think thats the kidney infection. Only symptoms prior really was INTENSE thirst/peeing cycles that were getting me up twice a night. Water has never tasted so good.Thats calmed down a bit since I had IV saline yesterday.

Stoop Crone (Trayce), Saturday, 3 June 2023 00:47 (one year ago) link

Only symptoms prior really was INTENSE thirst/peeing cycles that were getting me up twice a night. Water has never tasted so good.

That was my first symptom. That and passing out in meetings at work after lunch, and losing something like 20 pounds in about six weeks.

but also fuck you (unperson), Saturday, 3 June 2023 01:07 (one year ago) link

I still dont understand all the accucheck tests vs actual blood tests stuff.

I think--correct me if I'm wrong--the finger-prick at home is a snapshot of that moment, whereas the more formal blood test is a three-month average.

clemenza, Saturday, 3 June 2023 01:32 (one year ago) link

Which helped me not be so panicky at the beginning. My blood test started high, around 10.0, but my home tests right from the beginning were progressively lower, so I was confident they'd converge eventually.

clemenza, Saturday, 3 June 2023 01:34 (one year ago) link

Yeah previous tests were around 9. I'm not sure why it was so high yesterday. Combo of stress and fasting and illness I guess?

Stoop Crone (Trayce), Saturday, 3 June 2023 01:45 (one year ago) link

That's great then--it was a blip. Make changes, and you'll bring both numbers down (the three-month more gradually).

clemenza, Saturday, 3 June 2023 02:21 (one year ago) link

I assume the numbers trayce mentioned are blood glucose readings in mmol/L, which are the units they use outside the US. multiply by 18 to get mg/dL

get well soon, trayce!

k3vin k., Saturday, 3 June 2023 03:50 (one year ago) link

Trayce, I read your post on 77 and it reminds me a lot of my weekend from hell in 2019 when I learned I also had type 2. I was soooooooooo thirsty. And peeing every 20 minutes, and the pee smelled like maple syrup. When I tried to eat, every food tasted like eating a 9volt battery. I finally got in to see a doctor. My A1C was 14 and my blood glucose reading during my first visit was 355. My eyes were fucked up for months and I kept having to buy new glasses prescriptions until they settled down again.

Four years in, I'm being far more lax with my diet and exercise than a lot of the other people in this thread lol. Maybe Jardiance covers up too many sins when it comes to A1C, but I'm steadily between 5.5-6.5 at every doctor visit now and my waking sugar levels are right around 100-120 each morning.

ⓓⓡ (Johnny Fever), Saturday, 3 June 2023 11:59 (one year ago) link

Four years in, I'm being far more lax with my diet and exercise than a lot of the other people in this thread lol. Maybe Jardiance covers up too many sins when it comes to A1C, but I'm steadily between 5.5-6.5 at every doctor visit now and my waking sugar levels are right around 100-120 each morning.

I haven't really confessed my eating habits in detail because I didn't want to upset anyone who's got it tougher, but yeah, I'm waking up somewhere between 80-90 and still managing to eat bagels, hamburgers, pizza, and even a few cookies or a Snickers bar once a day. Jardiance has been a fucking miracle.

but also fuck you (unperson), Saturday, 3 June 2023 15:01 (one year ago) link

Going to ask my primary care doc about Jardiance, and about semaglutide (Ozempic et al) at my next checkup in a couple of weeks. I've been relying on metformin, glipizide and willpower for several years now and the willpower part is starting to wear me down mentally and emotionally. Part of me wants to take the just-stop-eating route (semaglutide) but I fucking love good food and drink. So if Jardiance can be a fucking miracle for me too and still allow a place for food in my life, sign me up.

There's a clinic in Tupelo that does semaglutide for anyone, barely any screening involved, $66 per weekly shot, cash and carry.

The Terroir of Tiny Town (WmC), Saturday, 3 June 2023 16:10 (one year ago) link

Fully sweetened soda is probably what got me into this position in the first place (I was a Coke and Mountain Dew fiend for decades), and that's the main thing I'm almost entirely eradicated from my diet and probably why my regular diet isn't throwing off my levels too much. Even if you pre-diabetic or not diabetic at all, STOP DRINKING SODAS.

ⓓⓡ (Johnny Fever), Saturday, 3 June 2023 17:11 (one year ago) link

WmC, my mom tried Jardiance for a while and her body didn't like it very much, so it's not a solution for everyone. But if it works for you, it REALLY works. Hope you can try it.

ⓓⓡ (Johnny Fever), Saturday, 3 June 2023 17:14 (one year ago) link

Mr. Jaq has been on ozempic for a month or so. The appetite reduction hasn't been much noticed but it also causes your liver to make/release less glucose and your pancreas to make more insulin. He's been able to taper back his injected insulin, drop the starch-blocker (still taking metformin) and his blood sugar readings have become more stable. His next A1C will indicate just how stable I guess.

Jaq, Saturday, 3 June 2023 18:58 (one year ago) link

Sugar being the cause of type 2 is actually not true!

I’m pre diabetic but I haven’t been taking my metformin rx. I can never remember to take it with meals because I eat so erratically, and it often makes me feel nauseous.

One of psych meds fucks with my blood sugar levels too.

just1n3, Saturday, 3 June 2023 19:43 (one year ago) link

My partner's type 2 as well and been on Metformin quite a few years, and he doesnt watch what he eats AT ALL, but his bloods are remission level. He mustve had it mild - maybe prediabetes (though he never said thats what it was), because he never had any symptoms.

Stoop Crone (Trayce), Saturday, 3 June 2023 23:31 (one year ago) link

fingerstick test at the GP today was 18 again FFS. But tbh this was only a couple hours after a meal of fish and some basmati rice so it mightve boosted things a bit.

But on the metformin finally (1000mg). I'm getting hit from all sides I also have to start taking blood pressure and cholesterol meds.

For someone who was beanpole thin til my 40s and never ate sugar or junk food, this is all really annoying. I tell you its good to live in my country though. We have a National Diabetes scheme that subsidises glucose meters and strips, our meds of course are all low-price thanks to the PBS scheme (govt subsidised medicine).

Stoop Crone (Trayce), Monday, 5 June 2023 09:57 (one year ago) link

I don't know if this is medically advisable, probably not, but as I mention above, I only home-test now after I've had a good couple of days, and I only test around 10 at night, a couple of hours after my evening snack. I want the best possible result, and it usually gets me what I want. Tonight was 5.2.

Also, I think fish is a good thing. I've cut back on rice, but eat lots of fish.

clemenza, Tuesday, 6 June 2023 02:35 (one year ago) link

(Canada's got good supports in place too.)

clemenza, Tuesday, 6 June 2023 02:36 (one year ago) link

I'm fortunate enough to have excellent prescription coverage through my health insurance, and anything "preventative" is no-copay. Would be nice to not worry about the cost of things, but always in the back of my mind somewhere I know that if I ever got laid off from this job I'd be fucked.

ⓓⓡ (Johnny Fever), Tuesday, 6 June 2023 03:48 (one year ago) link

Trayce, I got loaded up w choloesterol & BP meds too, it sucked! First time i ever needed a goddamn carry bag for my prescriptions

i’m a year in and it’s become manageable
my BP is pretty goddamn great & my cholesterol is back in normal range

i never went for anything more than metformin & i think i’m doing good, have been in 6.5 range for the past 2 a1c tests, but i do worry that i’m going to level off and i would like very much to try to get lower so i try not to get complacent & keep my daily exercise going etc

while also not stressing about it too hard

a delicate balance that i haven’t exactly mastered but i’m getting there

only downside of aging is that my stupid body is falling apart so i’m like pulling my hamstring getting out of bed or blowing a knee muscle walking up stairs

who knew just walking around could be so life threatening lol

werewolves of laudanum (VegemiteGrrl), Tuesday, 6 June 2023 03:59 (one year ago) link

I threw my back out getting into bed one night. If I can't sleep without being careful, stick a fork in me.

ⓓⓡ (Johnny Fever), Tuesday, 6 June 2023 04:14 (one year ago) link

First time i ever needed a goddamn carry bag for my prescriptions

LOL yes I felt like I was toting a lunch sack.

So the GP called me today after speaking to the Endocrinology dept at my local hospital and given my numbers has decided to up the metformin dose and add Sitagliptin to it. Its probably just for initial "woah horsey lets rein this right in" management, it will prob change if I improve.

First night on met was kinda unpleasant, I slept really bad and was sweaty with a racng heart. But I woke up feeling better than in quite some time.

Stoop Crone (Trayce), Tuesday, 6 June 2023 04:29 (one year ago) link

So its been a bit of a circus with my meds. The metformin wasnt agreeing with me, I wish she hadnt put me immediately on 1000 and then made me up it to 2000 the next night - I had 2 nights of racing heart, sweats and pukeahontas.

In addition, my kidney infection means I was on antibiotics but those started fucking with my liver, so now Ive had to swap THAT out too.

ANYWAY. My A1C it turns out had only been about 9, but the spike sincewas prob all the stress and infections. Since beingon Xelevia and being really strict with my eating, I've lost some weight and my daily bloods, while still too high, are steadily coming down (from 15 to 13 fasting, and as low as 10 just after lunch yeterday).

I'll try a lower dose of metformin once I'm off all the antibiotics and fingers crossed it doesnt give me crap at night because it made a huge diff the 2 days I was on it.

Stoop Crone (Trayce), Saturday, 10 June 2023 00:53 (one year ago) link

I'm cool with eating oats, grainy bread, lentils and chickpeas but I can NOT dealwith brown rice. It is gross, it reminds me of barley.

Stoop Crone (Trayce), Saturday, 10 June 2023 00:54 (one year ago) link

9.0 is basically where I started, and I moved down below the six-month goal in half that time. That's not a bad place to start. I'm eating chick peas for the first time in my life (add them to salad). I was already eating brown rice, but switched to basmati, and only two or three times a month.

clemenza, Saturday, 10 June 2023 04:19 (one year ago) link

gosh i eat basmati at least twice a week i thought it was ok cos low GI.

Stoop Crone (Trayce), Saturday, 10 June 2023 04:48 (one year ago) link

I consulted a dietician once, early on, and everything else I've adopted concerning diet I've gleaned piecemeal from--yikes--the internet. And my understanding is that any kind of rice is generally not ideal; okay occasionally, or okay in smaller quantities. The basmati I have has 33 g of carbohydrates/1 g of sugar per 45 grams.

After pizza, cheeseburgers, and baked goods, I probably miss rice more than anything.

clemenza, Saturday, 10 June 2023 05:07 (one year ago) link

I have rice probably twice a week now. Basmati mostly. Brown rice suuuuucks. My wife and I talked about it at one point and came to the conclusion that a life extended by eating brown rice is no life at all.

but also fuck you (unperson), Saturday, 10 June 2023 05:08 (one year ago) link

personally i think GI is bullshit

carbs are carbs imo and i treat them accordingly-eat sparingly, balance w fat & protein as much as possible, eat mostly veg & if i am carbing i go wholegrain

but everyone does this shit differently
find the way that works for you & your levels & your sanity

werewolves of laudanum (VegemiteGrrl), Saturday, 10 June 2023 05:56 (one year ago) link

Got a CGM attached to my arm for 2 weeks kindly donated by my endo team at the hospital, so I can live-monitor my levels for 2 weeks to see how my diet/exercise combo is going. I feel like a Borg now, with this bluetooth blot stuck to my arm!

Stoop Crone (Trayce), Tuesday, 26 March 2024 23:22 (two months ago) link

I've been meaning to post here -- last week I had my lowest A1C result in the 10(?) years since I was diagnosed with the Type2 -- 6.1. I didn't make any special effort -- just lucky afaict. I guess I just ate a little more healthily after the holidays.

Ippei's on a bummer now (WmC), Tuesday, 26 March 2024 23:36 (two months ago) link

Way to go. My weight has been creeping back up--from a low of 143 back up to 153-155 most mornings--so I was worried when I did my first home-test in three weeks. Still 6.0; I've been 5.0-6.0 for a year-plus now. I want to move both in the other direction, obviously, but not really at the cost of panic-monitoring everything like I did the first few months after diagnosis.

clemenza, Wednesday, 27 March 2024 00:15 (two months ago) link

I've been having low blood sugar incidents lately, waking up at 3 AM and having to stagger to the kitchen and eat a banana or a fistful of peanuts and raisins and then go back to sleep for another two or three hours. It's been happening about once a week and I'm not super thrilled about it!

Tahuti Watches L&O:SVU Reruns Without His Ape (unperson), Wednesday, 27 March 2024 00:32 (two months ago) link

I’ve been eating like absolute shit for the last 4.5mo since my last bloodwork so I was dreading it. But I guess the Ozempic is really doing the heavy lifting (I’m still on a minimal dose) or the Seroquel I used to take was really fucking up my stuff (or a combo) because my a1c has dropped again: 11 in august, 6 in November, now it’s 5.7!

just1n3, Wednesday, 27 March 2024 01:48 (two months ago) link

i have been able to keep myself at 5.7 to 5.9 for the past couple of years with Metformin and diet/exercise. It crept up a little at xmas and i think i’ll still be there for my next test but i figure as long as that stays pretty level, i’m ok - it’s hard not to stress abt daily #’s so remembering to pull out to a longer view helps me

i still wake up with higher fasting #’s from dawn syndrome but it’s not fucking with my overall number so idk what else i can do except keep everything else in check as much as possible

werewolves of laudanum (VegemiteGrrl), Wednesday, 27 March 2024 02:30 (two months ago) link

glad everyone is doing ok mostly though!

werewolves of laudanum (VegemiteGrrl), Wednesday, 27 March 2024 02:31 (two months ago) link

The range in these last few post is so narrow: 6.1, 6.0, 5.7, 5.7-5.9.

clemenza, Wednesday, 27 March 2024 02:54 (two months ago) link

i think we’re all doing pretty great - group high-fives all round!

werewolves of laudanum (VegemiteGrrl), Wednesday, 27 March 2024 03:28 (two months ago) link

High-fives all around, with a couple of low-sixes mixed in...

clemenza, Wednesday, 27 March 2024 03:34 (two months ago) link

I would blow the curve for everyone if I posted my numbers.

Tahuti Watches L&O:SVU Reruns Without His Ape (unperson), Wednesday, 27 March 2024 03:36 (two months ago) link

we’ve all been there - no judgement <3

werewolves of laudanum (VegemiteGrrl), Wednesday, 27 March 2024 03:45 (two months ago) link

had my 3-monthly A1C test and
am back to 5.7 so i feel reassured

my last one went up to 5.9 after a year at 5.7 which isnt technically a big deal but quietly felt like some kind of small failure psychologically

anyway we back

werewolves of laudanum (VegemiteGrrl), Tuesday, 9 April 2024 05:53 (two months ago) link

I don't know why I called this the diabetic thread, rather than the diabetes thread.

I'm right there with you...maybe. I did my first home-test in three weeks the other night with some apprehension--I've put 10 of the 25 pounds I lost back on--but it came in at 5.7. I've really let the three-month timeline slide, though. I'm going to go in tomorrow morning for my first A1C since November. I always home-test under optimum conditions, so we'll see.

clemenza, Monday, 15 April 2024 03:19 (one month ago) link

5.9. There's been a gradual uptick the past year, but still good:

03/13/23 - 5.7
07/19/23 - 5.7
11/06/23 - 5.8
04/12/24 - 5.9

I've been advised to supplement my Vitamin D intake, which doesn't surprise me; I've all but cut out dairy the past 18 months, just almond/cashew/soy milk with cereal and some yogurt.

clemenza, Monday, 22 April 2024 20:49 (one month ago) link

four weeks pass...

Checking in...Did my first home-test in five weeks: 5.7, exactly like the last one. Also, was talking to a cousin-in-law I rarely see the other day, and I didn't realize got diagnosed with Type II 30 years ago (he's in his late '60s). Says he home-tests once a month.

clemenza, Monday, 20 May 2024 02:50 (three weeks ago) link


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