Thanks. Two weird random things:
-Last night I had these crazy night sweats, literally covered in visible sweat and the sheets were soaked through. But this morning I felt the best I have in days (even after a bone marrow biopsy).
-A few days ago I picked up a Costco avocado, like I do most mornings, and got instant contact dermatitis. Probably unrelated (?) but weird.
― Random Restaurateur (Jordan), Thursday, 29 June 2023 19:00 (ten months ago) link
That's rough news Jordan. Take care and I hope the meds aren't too unpleasant!
― rincton monkspoon (NickB), Thursday, 29 June 2023 21:03 (ten months ago) link
Yeesh, sorry to hear it, and hope all goes very well!
― Ned Raggett, Thursday, 29 June 2023 21:04 (ten months ago) link
Hope the treatment goes well!
― xyzzzz__, Thursday, 29 June 2023 21:41 (ten months ago) link
Good luck going on, man
― Andrew Farrell, Thursday, 29 June 2023 22:16 (ten months ago) link
Thanks all <3
― Random Restaurateur (Jordan), Friday, 30 June 2023 03:59 (ten months ago) link
wishing all the best for you Jordan, take care
― Blues Guitar Solo Heatmap (Free Download) (upper mississippi sh@kedown), Friday, 30 June 2023 04:07 (ten months ago) link
best wishes, Jordan, fuck cancer indeed!
― brimstead, Friday, 30 June 2023 04:23 (ten months ago) link
luck jordan
― Ár an broc a mhic (darraghmac), Friday, 30 June 2023 08:07 (ten months ago) link
Good luck Jordan, hope it all goes well
― half the population ¯\_(ツ)_/¯ (gyac), Friday, 30 June 2023 09:05 (ten months ago) link
hey Jordan, thinking of you!
― butt dumb tight my boners got boners (the table is the table), Friday, 30 June 2023 11:13 (ten months ago) link
Hoping the best for you Jordan.
― Tracer Hand, Friday, 30 June 2023 12:33 (ten months ago) link
dang Jordan good luck!
― na (NA), Friday, 30 June 2023 16:21 (ten months ago) link
jordan, i'm so sorry you're facing this, that's awful news.
fight fight fight! i will be sending positive vibrations from my spot in the Post-Cancer (For Now) Network. it's good enough here, holding a seat.
― rick james, critical moralist (Hunt3r), Friday, 30 June 2023 18:51 (ten months ago) link
Appreciate the posts. <3
It might sound weird but after months of just dealing with this as a possible auto-immune thing with low platelets (and recently, my enlarged spleen pressing on my stomach and making eating difficult, this after I'd already just come off a colitis flare, and tried a bunch of restricted diets before that just to see if it helped), I'm feeling very positive about getting to an underlying cause. And assuming the bone marrow biopsy comes back as expected, this seems like one of the less aggressive and treatable varieties out there.
― Random Restaurateur (Jordan), Friday, 30 June 2023 19:18 (ten months ago) link
All the best Jordan. And fuck cancer, obvs.
― ailsa, Friday, 30 June 2023 19:53 (ten months ago) link
wishing you well, Jordan!
― rob, Friday, 30 June 2023 19:58 (ten months ago) link
fuck cancer, pulling for you Jordan
― official representative of Roku's Basketshit in at least one alternate u (lukas), Friday, 30 June 2023 20:28 (ten months ago) link
much love Jordan, hope your recovery goes smoothly and swiftly. fuck cancer.
― carthage marine park (Deflatormouse), Friday, 30 June 2023 20:43 (ten months ago) link
thinking of you Jordan and fuck cancer
― boxedjoy, Saturday, 1 July 2023 09:55 (ten months ago) link
Sending good thoughts.
― a man often referred to in the news media as the Duke of Saxony (tipsy mothra), Saturday, 1 July 2023 17:59 (ten months ago) link
all the best to you, Jordan
― donna rouge, Saturday, 1 July 2023 19:10 (ten months ago) link
Hoping for the best, Jordan. Fuck cancer.
― New No-No Bettencourt (Sufjan Grafton), Sunday, 2 July 2023 04:18 (ten months ago) link
It turned out it's a different type (hairy cell leukemia, even more rare), but with a similarly good prognosis. I've got a marathon of gigs this weekend and then starting chemo on Monday (which I'm actually quite eager about, because the constant bloating/gastro issues have been rough).
― Random Restaurateur (Jordan), Friday, 14 July 2023 15:23 (nine months ago) link
recommendation time: find a sort of mindless but creative activity to do when yr going through chemo. helps a lot.
― butt dumb tight my boners got boners (the table is the table), Friday, 14 July 2023 15:31 (nine months ago) link
he says this to an ilxor by gad
gluck again jordan!
― Ár an broc a mhic (darraghmac), Friday, 14 July 2023 15:42 (nine months ago) link
lol. I'm bringing some crosswords and books, I guess I can zone out to some podcasts and Mario Maker youtubes if I don't have the mental energy for reading. :)
― Random Restaurateur (Jordan), Friday, 14 July 2023 15:44 (nine months ago) link
I mean, I had books, but i also cut out interesting things out of magazines with no real point in mind, and then a year later found them and wrote mynext book using them
― butt dumb tight my boners got boners (the table is the table), Friday, 14 July 2023 16:49 (nine months ago) link
Jordan, there's this game where you somersault around with a sword. Might be worth looking into.
― New No-No Bettencourt (Sufjan Grafton), Friday, 14 July 2023 17:14 (nine months ago) link
lol, maybe if I had a Switch. I'll probably do a comfort run of the first Dark Souls while convalescing.
― Random Restaurateur (Jordan), Friday, 14 July 2023 17:26 (nine months ago) link
Done with chemo week, now I just have weekly infusions of a monoclonal antibody drug for awhile. Currently I'm acquiring more symptoms from the treatment while not seeing relief from the GI symptoms I've been having yet, but overall things are going well & I'm hanging in there. Eating normally too, so there's that.
The new David Grann book is coming in clutch and at home I am indeed playing through Dark Souls yet again, lol.
― Random Restaurateur (Jordan), Saturday, 22 July 2023 16:04 (nine months ago) link
Yeah I need to get that Grann book. Hope things maintain/improve!
― Ned Raggett, Saturday, 22 July 2023 16:05 (nine months ago) link
Had missed the above until now, good luck Jordan
― curmudgeon, Saturday, 22 July 2023 19:49 (nine months ago) link
Best of luck to you Jordan!
― Toshirō Nofune (The Seventh ILXorai), Saturday, 22 July 2023 21:43 (nine months ago) link
hoping for the best jordan
― ꙮ (map), Saturday, 22 July 2023 21:55 (nine months ago) link
Keep chugging along jordan, sending positive vibes!
― NickB, Saturday, 22 July 2023 22:21 (nine months ago) link
Today is the fifth anniversary of my best friend dying of lung cancer age 46. Fuck cancer.
― il lavoro mi rovina la giornata (PBKR), Wednesday, 26 July 2023 23:59 (nine months ago) link
Been in the hospital all week on account of being neutropenic, it's lame. Food is stereotypically awful but I've found at least one or two things they can't fuck up, so I'm getting the hang of this. Hopefully things will start trending up soon.
― Random Restaurateur (Jordan), Thursday, 27 July 2023 00:32 (nine months ago) link
Good luck! Hospitals have a culture all their own, it can be strange to observe
― Andy the Grasshopper, Thursday, 27 July 2023 00:45 (nine months ago) link
Wishing you the best on your journey, Jordan.
― il lavoro mi rovina la giornata (PBKR), Thursday, 27 July 2023 01:45 (nine months ago) link
take care jordan! everyone here is rooting for you.
― call all destroyer, Thursday, 27 July 2023 01:49 (nine months ago) link
― Random Restaurateur (Jordan), Thursday, 27 July 2023 03:04 (nine months ago) link
Sorry PBKR. That's no age. GL Jordan!
― kinder, Thursday, 27 July 2023 15:31 (nine months ago) link
some happy news for the thread: had 6-month bloodwork done today and all was good. Next 6-month will be my final one if things remain good, and then I will go year-to-year and officially be in “remission.” 🙂
― butt dumb tight my boners got boners (the table is the table), Thursday, 27 July 2023 15:38 (nine months ago) link
best wishes Jordan and table
― brimstead, Thursday, 27 July 2023 15:51 (nine months ago) link
and condolences PBKR
― brimstead, Thursday, 27 July 2023 15:52 (nine months ago) link
thanks.
And that's great news, table.
― il lavoro mi rovina la giornata (PBKR), Thursday, 27 July 2023 17:12 (nine months ago) link
tell us a little about your friend?
much love Jordan.
written report from my ct scan shows that my lung tumor is growing, but slowly. this is not what i was told on the phone, but prob nbd & i'm sure will be clarified at my next appointment.
― all this time I thought you were British (Deflatormouse), Thursday, 27 July 2023 17:39 (nine months ago) link
many condolences about your friend PBKR. Jordan, wishing you the best luck, and tabes, glad to hear about your news.
Deflator - really hoping that it was a 'lost in translation on phone' thing and that it turns out not to be a big deal. best wishes for ya.
― linoleum gallagher (Neanderthal), Thursday, 27 July 2023 18:41 (nine months ago) link
from upthread:
Cancer sucks.I lost my best friend of more than twenty years to lung cancer this summer at age 46 after a nearly three-year battle. He was the most fun-loving, laid-back cat, my best drinking buddy, and the person responsible for turning me on to more of my favorite music than anyone else. I still find it insane when I think he is actually gone. I feel so luck to have known him.― Andrew "Hit Dice" Clay (PBKR), Friday, November 2, 2018 10:53 PM (four years ago) bookmarkflaglink
I lost my best friend of more than twenty years to lung cancer this summer at age 46 after a nearly three-year battle. He was the most fun-loving, laid-back cat, my best drinking buddy, and the person responsible for turning me on to more of my favorite music than anyone else. I still find it insane when I think he is actually gone. I feel so luck to have known him.
― Andrew "Hit Dice" Clay (PBKR), Friday, November 2, 2018 10:53 PM (four years ago) bookmarkflaglink
He was really mischievous, hysterically funny, but also chill. Turned me on to Bob Dylan 28 years ago - he was the favorite artist of both of us - and whenever I listen to Bob I get to spend time with my friend again. So I listen to a lot of Dylan.
Not to pry, but how soon is your appt? I know you know, but don't be afraid to try to escalate.
― il lavoro mi rovina la giornata (PBKR), Thursday, 27 July 2023 18:49 (nine months ago) link